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EPPOSI Workshop on Patients Registries for Rare Disorders>>Brussels, 18 March 2009 Patient Registry Establishing and Maintenance Issues at stake Tsveta Schyns, PhD Founder and ...
EURORDIS' efforts finally paid off when the candidatures of Tsveta Schyns and Karen Aiach were accepted in July last year. Tsveta Schyns was selected based on her experience of ...
Tsveta Schyns is the founder of ENRAH. She is a biologist, but first and foremost she is a concerned mother. Tsveta describes for our readers how she built and obtained financing ...
... VSOP), PatientPartner Coordinator, The Netherlands Khazal Paradis Genzyme, The Netherlands Sue Pavitt Clinical Trials Research Unit, University of Leeds, United Kingdom Tsveta Schyns ...
The Organising Committee was co-chaired by Tsveta Schyns (ENRAH), Ségolène Aymé (INSERM / Orphanet) and Elizabeth Hernberg-Stahl (SHIRE-HGT).
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